Monday, June 6, 2011

Our day at PCMC

Well today was Xanders cardi appointment and it was a very long one at that, but from what I have heard spending 4.5 hours up at PCMC is a normal day on appointment day.  I have to admit that i did not sleep very well last night, i think all worst case scenarios went through my head which really did not help the nerves.

Xander was such a good little man while he was having his ECO done he just laid there  watching the girl and looking at the monitor of his heart, he would occasionally smile at the cute tech and she would tell him how handsome he was which made him smile even more ( such a flirt he is)

After his cardi doc reviewed his ECO we sat down and went over our next steps.  As of right now his main concerns with Xander is that he is sweating more and that he is now irritable and has noticed that if he is held up right that he is no longer fussy but once laid down he starts to cry instantly ( now of course most babies its because they are spoiled and want to be held all the time which could be his case but his doc stated that its not that way with him this time due to the ECO results)  The Eco showed that his heart is starting to ware and with each pump it does it stresses and makes more pressure with in his chest making him uncomfortable.

So to help with with the stress of the heart they have now put him on Enalapril which will help with the stressful pumping of the heart and relax it more which will give us more time to get him back up to the 10 pound mark for surgery. They have also uped his dosage per hour to help with weight gain. 

The process for his heart surgery has now been started and will be happening some time in July.  He will first need to go in a week prior to surgery to have a heart cath done ( to make sure all presure in areas are well enough to proceed)  and then he will have a sedated ECO done. 

July is just around the corner and to be honest is scares me knowing i will once again be handing off my baby X to his surgeon and waiting for updates as the surgery goes on and having my heart up in my throat each time they come in or call with an update.  I know that he is in the best hands possible but this momma just wants him in her hands. Xander will continue with his journey and will fight what ever comes his way.

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