day by day

Its been a while i know but i have some great news.. On Wednesday 3/16/2011 Xander had his follow up appointment from being released from PCMC. He had an xray,ekg, and feeding tube replaced. His xray came back great and his ekg was awesome as well. they check his stas whith him off his oxygen for about 30 minutes and he was able to hold his own air supply up in the high 80's. YAY!!! He is now off of the oxygen but will evwentually need it again as time gets closer to his next heart surgery (Glenn). He is not gaining any weight though but instead is losing so we are still sitting at 7 pounds 3 oz. which he was 7.5 when we left the hospital with him. They have upped his feeding dosage from 18cc to 20cc an hour, hopefully we can get him to thicken up soon, but in the meantime i am enjoying his smallness since i lost a full month with him and playing dress up with the newborn clothes while i can since we still fit in them at this time. Xander has proven that he is a fighter but he has also brought our little family unit tighter and closer than we could ever imagine it to be.